My Situation.
Published by Jimbee68 in the blog Jimbee68's blog. Views: 17
What's really frightening is the neuropathy in my hands. I seem to have them in both, especially the right hand. As far as I know, I don't have that diagnosis. My doctors just seem to agree I have neuropathy in my feet. My podiatrist does at least. My neurologist seems to claim I don't have neuropathy anymore, even though I obviously do and I don't think you can overcome it. And my eye doctor claims I don't have diabetes anymore, even though I also think that is impossible. But I have to rely on her. She gives me my eye drops for my glaucoma. I can never miss a dose of that, so it's not like I can just stop seeing her suddenly. And these all may affect my independence and my ability to drive someday, which are all very important. Important that I always have medical consent and other rights. Rights that I can only have living alone. If I were even in a nice group home or nursing home I'd lose those. I'd have to do what they say and take whatever medicine they say. Especially if I was still under a secret guardianship and under a secret court order to take medicine, which I'll just never really be sure of. And how will I drive if I lose my hands? A person without feet could drive, but never a person without hands. That just can't be allowed to happen. But neuropathy is lifelong and it is progressive. It is now too late to avoid that. And I can't just handle all these legal matters myself. I need someone to help me. Reach out to some free legal organization, I'm told. That takes time and effort, and really takes away from my quality of life that I have spend all my time and energy doing that now. And it's hard for me to get things done, it always was. And people who I reach out to are all largely just ignoring me and not returning my emails and calls, like people usually do. And if they ever do respond, it's only to claim my case doesn't even exist. How I am supposed to fight for my legal rights when my case doesn't exist, even thought everyone knows it obviously does? And everyone has known this for a couple years now. And nothing is being done. And like I said if they treat me like this and don't care when they damage me permanently and others are aware of it, I trust people can see. See why is important that hold onto my car and independence. And plus who says the nursing homes and group homes in Detroit are even that nice. I'll probably be dumped in one one day by whoever is taking care of me by then and I already know I'll neglected horribly there and ignored. I'm not used to that kind of life. And plus people are beginning to tell me already, why don't you just take the bus? I don't know if you know. When you've grown up in the middle class, that's an insult. Why don't you take the bus. The dirty, smelly bus. Like I felt like telling the police in 2005, why don't they take the bus. It's sad that anyone would think that taking the bus is all right, that they live in that economic class. And something should be done about that too like I said. But I just know I have no intentions of ever living that way.
You need to be logged in to comment

