What do you know about this deadly disease?

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Nope. And honestly, there's millions of other diseases that neither me or you have ever heard of that are probably claiming lives today. That's why it's important to stay relatively healthy, eat your fruits 'n veggies, and get plenty of rest. It sounds cliche, but it's true.

 

my mom has a very rare disease Primary Pulmonary Hypertension (PPH) here is the link to read about it http://www.lungusa.org/site/pp.asp?c=dvLUK9O0E&b=35699

 

I did, but only in association to asbestos.

As for a rare deadly disease: hemophagocytic lymphohistiocytosis. There's one that trips off the tongue (or more likely, trips-up the tongue)